Most commented posts
- I lost my way in the kitchen today — 7 comments
- About Vicki’s Voice — 7 comments
- There once was a gal with Dystonia — 4 comments
- Our Stories… — 3 comments
- October 22, 2009 – Making Memories (Revisited) — 2 comments
Author's posts
Dec 21
About Vicki’s Voice
In July, 2009, I was diagnosed with Frontotemporal Dementia (FTD) – Picks disease. Looking back, there were symptoms, but no explanation for what I was experiencing. As happens with most of the estimated 250,000 people with FTD in the United States alone, the correct explanation and diagnosis didn’t come until the disease had been progressing …
Permanent link to this article: https://vickisvoice.tv/2009/12/about-vickis-voice/
Dec 12
FTD not just bouquets
Today was a black day. I didn’t want to harvest on my FB farm, or cook in my virtual cafe. I didn’t do the exercises I desperately need to maintain my “buns o’steel”, and learn to walk better. Living with this disease is a quiet thing. I have days, like today, where I can’t move …
Permanent link to this article: https://vickisvoice.tv/2009/12/ftd-not-just-bouquet/
Nov 11
November 11, 2009 – ‘Reveille’ Nouveau
4:00 a.m. and the restlessness sets in, indicated by stirring, scratching, stretching. By 4:30 the roosters are exercising their lungs, beginning their morning wake up ritual. “Hello?” replaces the ‘err a-err a-errr!!’. It starts quietly, one by one, by 5:00 they are in full voices. “Hello? Hello?? HELLO!!!” “Here.” “Here!!!” “HERE!!!!” As a neighbor, I …
Permanent link to this article: https://vickisvoice.tv/2009/11/november-11-2009-reveille-nouveau/
Aug 19
Journal: August 19, 2009 – Dancing Alone
I watched Gus (Gustapoo Oakley) beside himself as his only neighbor dog, OZ, went whistling by our window, unhindered by a confarndit leash, with another dog. It took me hours to help him calm down. Gus and I are a lot alike. Any visit, via the yard, the mail, email or cell is a gift …
Permanent link to this article: https://vickisvoice.tv/2009/08/journal-august-19-2009-dancing-alone/
Aug 15
Journal: August 15, 2009 – Foggy
Felt a little ‘foggy’ today. A friend had stopped by, and it was an effort to focus on him. I said “I’m sorry but I am seeing you from a distance. Can barely hear you.” Two hours later I was in the middle of something called “Distonia” facial and body spasms, not unlike a seisure …
Permanent link to this article: https://vickisvoice.tv/2009/08/journal-august-15-2009-foggy/
Vicki Wells Bedard
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