Jul 18
Yesterday, July 17, 2014, was the 5-year anniversary of Vicki receiving her diagnosis of having something called “Frontotemporal Dementia” (FTD), and was told she had only 6 months to 2 years left to live. I visited Vicki 4 weeks later. She’d been trying to find out as much as she could about this disease. One …
Permanent link to this article: https://vickisvoice.tv/2014/07/christine-bryden-conversation-dementia/
Apr 02
Vicki and I recently read an excellent article about one man’s signs and symptoms of FTD – and the need to keep pushing for an accurate diagnosis. Brandt Henderson was 58 years old when the article was written last year. He shares how he’s experiencing FTD and what it means for his family. Brandt’s early signs …
Permanent link to this article: https://vickisvoice.tv/2013/04/forbes-its-not-me-its-the-disease-making-sense-of-a-brain-disorder/
Jan 05
Our dear friend Susan Grant, also a person with FTD, has written an eBook with information about living with FTD and practical steps that persons who suspect they might have dementia, or have been diagnosed with the disease, should take to help manage their quality of life. The eBook is free and available on Susan’s …
Permanent link to this article: https://vickisvoice.tv/2013/01/free-ebook-living-with-ftd/
Mar 12
Vicki and I have recently been reading a blog by Howard Glick, a New Yorker who was diagnosed with FTD in 2010 and started blogging about his life with FTD in the summer of 2011. Like Vicki – and many others – after several years and incorrect diagnoses, Howard was diagnosed with Frontotemporal Degeneration in …
Permanent link to this article: https://vickisvoice.tv/2012/03/howard-glicks-blog-and-online-support-group/
Jan 23
Vicki and I have met many wonderful people – some online and some in person – whose lives have been affected by FTD. Some of them share about their lives through writing – books, blogs, Facebook posts. Earlier this month one of our friends, Michelle Sewell Burdette, shared her memories and thoughts on the 1-year …
Permanent link to this article: https://vickisvoice.tv/2011/01/other-voices-a-year-of-loss-lessons-and-blessings-to-share/
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