May 25
“End of life” is something constantly in mind but not spoken of too much on Vicki’s journey. Most of us don’t like to talk about death, even when it’s clearly going to happen. Since finding out about Vicki’s Frontotemporal Dementia diagnosis almost 4 years ago, I’ve “willed her to live” as long as she can, …
Permanent link to this article: https://vickisvoice.tv/2013/05/prepare-for-a-good-end-of-life/
Mar 03
FTD is a strange disease in so many ways. In the 3-1/2 years since Vicki was diagnosed, I’ve seen her have ups and downs more extreme than any roller coaster. It can be hard for her to accomplish tasks some days; other times Vicki amazes me with her mental speed and ability. Vicki has been …
Permanent link to this article: https://vickisvoice.tv/2013/03/speedy-thinking-speedy-action/
Feb 05
This past weekend, Winter storms kept me from visiting Vicki; it’s been too long since my last visit. In a separate blog I’ve started, last month I wrote about something we experienced during my last visit that shows how quickly and unexpectedly things can change. Here, slightly adapted, is what I wrote: I thought I’d …
Permanent link to this article: https://vickisvoice.tv/2013/02/weathering-the-storms/
Jan 05
Our dear friend Susan Grant, also a person with FTD, has written an eBook with information about living with FTD and practical steps that persons who suspect they might have dementia, or have been diagnosed with the disease, should take to help manage their quality of life. The eBook is free and available on Susan’s …
Permanent link to this article: https://vickisvoice.tv/2013/01/free-ebook-living-with-ftd/
Mar 12
Vicki and I have recently been reading a blog by Howard Glick, a New Yorker who was diagnosed with FTD in 2010 and started blogging about his life with FTD in the summer of 2011. Like Vicki – and many others – after several years and incorrect diagnoses, Howard was diagnosed with Frontotemporal Degeneration in …
Permanent link to this article: https://vickisvoice.tv/2012/03/howard-glicks-blog-and-online-support-group/
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