Phone Connection

A friend of ours took a picture of Vicki while she was talking with me on the phone last week. I live a few hours’ drive from Vicki, so we depend on the phone and Facebook between my visits. Looks like she’s enjoying our conversation.

Jim Coyle

Vicki 35 150w

Permanent link to this article:


Skip to comment form

    • freda on January 14, 2010 at 11:22 am
    • Reply

    Great photo of you, Vicki.

    You may like to see the blog at ‘’ sometime -David (psychiatrist) tells his personal story of a dual diagnosis of FTD and LBD, and includes related topics and resources – with humor!

    Hugs freda

    • Jim Coyle on January 15, 2010 at 12:27 pm
    • Reply

    Thanks for mentioning David’s blog. I’m glad to find out about another person sharing his experience as someone living with dementia. Everyone’s story is very helpful to all of us.

    I’ve recently found an audio interview with Dr. Richard Taylor, a psychologist diagnosed with dementia, probably of the Alzheimer’s type. It’s insightful for people dealing with almost any type of dementia. It’s online at (I shortened the very long web address). Richard Taylor has a website with many of his writings at

    Blessings, Jim

    • freda on January 19, 2010 at 8:08 am
    • Reply

    Thankyou Jim.
    I have listened to Dr Richard Taylor’s audio interview and found it very pertinant and true. That a sense of purpose is needed and to be treated as a whole person is vital. Yesterday I was able to use his concept of ‘slipping’ with a new carer ( it seemed better than ‘up and down’ in describing the sometimes daily changes).
    Thankyou for your ‘thoughts’ on facebook – they have been drawn to the attention of a bereaved carer – as we have had 7 people passed on from our groups in the past few weeks, they have also been of help to me.
    Your help is very much appreciated. freda

    1. You’re welcome, Freda. I’m glad I’m able to help. And I thank you for your comments to Vicki and to me. It means a lot to know we’re helping other people. Vicki really wants to connect and communicate with other people affected by dementia as long as she can.

      Vicki and I have been friends for over 20 years, but after she was diagnosed with FTD last year and I visited her, I felt compelled – called – to support her any way I can for the rest of her journey in this life. As I’m sure it is in most situations, this is all new to Vicki, her family, and me. Each of us is trying to learn as much as we can so that Vicki lives each day as fully as possible. She’s having challenges, some of which she’s written about here. But she’s also doing amazingly well in many ways so far.

      Since I don’t live close to Vicki, I can’t be a regular carer. But I’m blessed to see her regularly and to stay in contact in between my visits.

      This is Vicki’s blog and my plan was to mostly be the tech person behind the scenes. But I’m involved in the journey too, glad to help Vicki tell her story to more people and hear others’ stories. And I’m so glad you and other people have been responding and sharing. What’s happening in all of our lives is very important, and I’m glad we’ve been able to connect with one another.

      I hope this is OK:
      Hugs, Jim 🙂

        • freda on January 23, 2010 at 6:04 am

        Of course that’s ok
        Take care
        Hugs freda

  1. Dear Freda, apologies for my lag time in replying. I’m learning it takes very little to overwhelm me, and these last 2 weeks I have avoided communicating in general.

    Thank you for the good information and outpouring of support.

    Much love and blessings, Vicki

    • freda on January 27, 2010 at 11:45 am
    • Reply

    Dear Vicki,
    No problem at all ……… I know a little of what you mean about having to hibernate sometimes ……… gives me a chance to get going again too!

    I have posted on the forum at ‘’ a short piece about your blog – this is the Pick’s disease support group in uk.

    I think your site is building up nicely now and you have some great people and connections discovering you and joining in ……… well done!

    Love and hugs freda

Leave a Reply

Your email address will not be published.

This site uses Akismet to reduce spam. Learn how your comment data is processed.